Life Beyond The Ordinary

Who This Site Is For

What You Will Find

This space is for you if you are:

• Living with chronic illness, rare disease, or disability

• Newly diagnosed and overwhelmed

• Navigating medical burnout or advocacy fatigue

• A caregiver or loved one wanting to understand better

• Lived Experience – Honest stories from life inside a chronically ill body

• Medical Navigation & Advocacy – Appointments, gaslighting, and self-advocacy tools

• Practical Tools – Trackers, planners, printable resources

• Community & Language – Words for what you’re feeling when you don’t have them

• Gentle Empowerment – Sustainable coping, rest, and resilience

Stay connected

Gentle updates for your inbox, no pressure

Trust / Mission

Rarely Ordinary Collection exists to support — not exploit — the chronic illness community.

10% of proceeds from the Rarely Ordinary Collection Etsy Shop are donated to the Ehlers-Danlos Society to support research, education, and advocacy for those living with Ehlers-Danlos syndromes and related connective tissue disorders. In addition, 10% of proceeds from HOPE – Hope Overcomes Pain Everytime are donated to the Lupus Foundation of America, helping fund lupus research, patient resources, and national advocacy efforts.

" Everything I create comes from the places I once needed help and couldn’t find it. "

- Baylie Phillips, HOPE – Hope Overcomes Pain Everytime

Hope in Stripes

Hope in Stripes is a space for those living in bodies that work differently. Through education, advocacy, and lived experience, this blog explores chronic illness, rare disease, caregiving, grief, resilience, and hope — offering clarity and comfort in a world that often misunderstands invisible illness.

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Trusted Voices

Real Stories

Interested in sharing your story?

Submit a contact form with a short description of your story. If we are interested, we will reach out to you. We require you to write your own story to avoid any miscommunication and errors. We will edit your story for grammatical errors and format it to fit the design of the blog.

Featured Products

Explore our curated collection of unique jewelry, eye-catching keychains, stunning wall art, and custom stickers that add a personal touch to your wellness space. Don't miss out on our stylish tumblers, durable tote bags, fashionable clothing, and wellness bundles, along with invaluable digital resources such as symptom trackers, educational PDFs, and advocacy guides tailored to enhance your journey.

Physical Products - Coming Soon!

• Jewelry

• Keychains

• Tumblers

• Medical Alert Cards

• Coasters

• Wall Art

• Stickers

• Tote Bags

• Clothing - Available Now!

Digital Products

• Symptom Tracker

• Doctor's Appointment Template

• Educational PDFs

• Medical ID Template

• Patient Advocacy Guide

• Caregiver Advocacy Guide

• Caregiver Note Sheet

• Hospital Stay Planner

• And more!

• New Diagnosis Kit

• Hospital Survival Kit

• Surgery Recovery Bundle

• EDS Starter Pack

• Caregiver Support Bundle

• Teen / Children Support Bundle

Wellness Bundles

About The Creator

Hi, I’m Baylie.

I’m a patient, advocate, and writer living with multiple chronic illnesses. Rarely Ordinary Collection was created from lived experience — the kind that doesn’t fit neatly into pamphlets or appointment summaries.

This space exists to support people navigating complex medical lives with honesty, dignity, and care.

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